As a strong supporter of the science research into all genetic and rare diseases, and in the search for finding new ways to to support and promote best practices, our team is very pleased to announce the newly created partnership between DNAdigest and the Cambridge Rare Disease Network.
The Cambridge Rare Disease Network is a not-for-profit organisation based in Cambridge, UK. Their mission is to bring together the active stakeholders in rare disease research and development, to foster dialogue and to increase awareness. And they are officially launching on the 2nd of April 2015!
Join them for this Launch Event which will take place on April 2nd at 5.00pm at the Cambridge Judge Business School. Keynote speakers will share their journey in building entire organisations in order to find a cure for their children affected by a rare disease.
Keynote speakers include:
- Dr Nick Sireau, Founder of the AKU Society and charity Findacure;
- Ms Kay Parkinson, Founder of patient group Alstrom Syndrome Society;
- Dr Will Evans, Trustee of the Niemann-Pick Disease Group;
- Dr Cesare Spadoni, Founder of aPODD Foundation.