The Nuffield Council on Bioethics held their second fact-finding meeting on September 12th. The summary from their latest meeting presents the combined expert knowledge of the current status of patient privacy in relation to data access issues in research and clinical practice.
Some interesting points were raised during the meeting, including:
- patients do not necessarily value privacy to the exclusion of all other interests;
- the engineering techniques for providing complex data controls to patients and participants exist, but the political will to implement them is often lacking;
Read the whole list and summary on the councils webpage, and sign up to their newsletter to stay up-to-date with their work on biomedical and health data.